Making dementia prevention and cognitive longevity actionable requires a shift in focus – away from disease and toward the pre-pathological phase, before cognitive decline takes hold. Rapid advances in remote measurement technologies, including the emergence of quantum sensing, alongside the expansion of 5G networks and neurotechnology devices, create unprecedented opportunities for decentralised and democratised use of health data. To realise this potential, health data must be governed and applied in ways that generate meaningful insights for innovation and AI,  while preserving individual agency and trust.

NeuroCentury’s Pawel Swieboda is co-author of a new paper, led by Chris Albertyn and Svitlana Surodina, and published in Taylor & Francis Group’s new journal Longevity EPSM (Open Access), a person-centre data ecosystem framework is proposed for dementia prevention and cognitive longevity. The framework advocates not only for “human-in-the-loop”, but for “human-at-the-center” data ecosystems that link healthcare, research, commercial, and real-world exposomic data, with dynamic consent and equitable value exchange built in from day one. Crucially, it emphasises the need to include individuals, alongside other key stakeholders, in the design, ongoing operation, and shared benefits of any value generated within a cognitive longevity ecosystem. It also stress the importance of engaging underserved populations and ensuring their data is not excluded.

Link to the paper: https://www.tandfonline.com/doi/full/10.1080/30653495.2025.2570721